Saturday, 29 May 2010

A diagnosis story

So, I promised an informative blog about being a young adult with a condition no one my own age seems to want to talk about. As such I guess I owe the world my own PCOS story. 

From about February 2009 my cycle started messing up more than usual, I mean, I had never had a regular period on my life but they had always been almost totally painless. Then they started getting all out of what, the break between them last from 3 weeks to nine weeks and the bleed lasting between three and ten days. Then on top of that I started cramping until finally it reached a stage where I got two  weeks between one period and the next and then it last for ten days and felt like it was trying to kill me. I was tired and cranky and I knew something wasn't quite right, so I finally sucked up all my embarrassment and went to see my GP. 

My doctor actually turned out to be incredible, one of the things I come against time and time again when reading others people's experiences of the condition is that they struggled for years to get a diagnosis. I was very quickly booked in for blood tests and a full sexual health screening to rule out any other causes, my doctor even offered me a test for HIV and Syphilis! When the blood work all came back clear (strange eh?) the doctor referred me to the hospital for an ultrasound.

The ultrasound referral paperwork was waiting on the doormat when I arrived back at Uni after the christmas break in February 2010 and so off I tottered to the hospital. I can remember how uncomfortable that was, honestly, having drank an insane amount of water prior to the appointment (as requested) having the sonographer pressing  the thing against my abdomen was a nightmare. If I think about it I can also remember what the pictures on the display looked like, but no one said a word to me. No one told me anything. I also had fresh blood taken for testing. 

The ultrasound results were with my doctor before the blood results and this confirmed the doctor's suspicion that it was indeed polycystic ovaries. She showed me the pictures again and explained everything and then asked me what I wanted to do.  After a brief discussion I left with a prescription for Microgynon and a head swimming. 

When the blood results came back the surgery called me and I was made an appointment with one of the senior partners at the practice. She went over the diagnosis with me, discussed why it has been suggested that I try hormonal birth control to both regulate my periods and make them lighter/less painful and she also prescribed Adalpene cream (Differin) for my facial acne. The blood results showed a real lack of estrogen and progesterone and very high levels of androgens, suggesting my hormone levels most likely fluctuated throughout my cycle as the other results had been clear.  

And that was in February. Now we are almost in June and I have switched off of Differin and onto PanOxyl as Differin was drying out my face to a point where it was incredibly painful and utterly unbearable. I have also just began using the Evra patch rather than the pill as I am an utter klutz who can't remember to take a pill every day. 

So there we have it, my diagnosis story. 


Friday, 28 May 2010

A little about me

Hello!

I'm new to the whole blogger set up, having long held a LiveJournal. However, I think the time has come to try something new and also to take a chance at reaching a wider audience. So, to kick things off here is a little about me, also known as - everything you need to know about me and probably a little more! 

I'm a twenty one year old Law student at the University of Stirling and in February 2010 I was diagnosed with poly-cystic ovary syndrome (PCOS.) It was a diagnosis I was both expecting and not expecting at all. I knew it was a possibility but this was another one of those things I never expected to happen to me. Despite as many as 1 in 10 women in the Western World having PCOS I had never really heard of it until the day I went to my doctor to ask her why my period felt like it was trying to kill me.

Since I asked my doctor that question in November 2009 and she first hinted towards PCOS I have spent more time than is probably healthy looking into the condition on line and seeking out others just like me to talk to. Because, if I am brutally honest, my doctor handed me a diagnosis, a prescription and booted me out of the door to cope with the emotional fall out by myself. The internet and my friends kept me sane but I found a real lack of voices my own age openly talking about this condition. I guess it's because none of us like talking openly about menstrual cycles, acne, excessive hair, cramp and all those other nasties. So, here I am, willing to open it all up and let others like me know what the score is. 

Moving aside from PCOS I am your pretty average student... Well, I guess I'm not because I don't really go out on the town all that much. But, I'm a pretty average gal. I have friends and hobbies. I like to read and outside of term time I play World of Warcraft. I swim semi-regularly and so far this year I have run a 5 Km and 10 Km road race and was scheduled to run a half marathon until I scored myself a fantastic quadriceps and hip flexor injury. I spend far too much time on my computer and watching Facebook, recently becoming addicted to playing Bejewelled Blitz and Farmville. 

What else can I say? I actually don't know, I've never been good at talking just about myself in general, so I think that will have to do. I plan to be back tomorrow with a new post and hopefully something a little more interesting to fill the pages of my life with law and PCOS. 

- Kizzi